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Determining Soil-transmitted Helminth Infection Status and Physical Fitness of School-aged Children
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Public Health.
Olufisayo Oluyinka Elugbadebo1, Faithful Moposi Akintade2, Cynthia Olapeju Olawuyi3
1University College Hospital, Ibadan, Oyo, Nigeria.
Alzheimer'S & Dementia : the Journal of the Alzheimer'S Association
|December 23, 2025
Summary
Participant engagement in dementia research is vital, but challenges like unmet expectations and poor communication hinder retention in low- and middle-income countries (LMICs). Improving transparency and disseminating findings are key for ethical and impactful studies.
Area of Science:
- Gerontology
- Neuroscience
- Public Health
Background:
- Participant recruitment and retention in research, especially with older adults, present significant challenges.
- Low- and middle-income countries (LMICs) face unique hurdles in dementia research due to unmet participant expectations and potential attrition.
- Understanding participant experiences is crucial for improving engagement and ethical practices in dementia research within LMICs.
Purpose of the Study:
- To explore the experiences and perspectives of participants in dementia research in Southwest Nigeria.
- To identify strategies for enhancing participant engagement, retention, and ethical conduct in dementia research in LMICs.
- To address the specific challenges faced by participants in dementia research within resource-constrained settings.
Main Methods:
- A qualitative narrative approach was employed, utilizing key informant interviews (KIIs) with 15 family dyads involved in dementia studies.
- Interviews were conducted between January and September 2024 in community or clinic settings in Southwest Nigeria.
- Thematic analysis of transcribed interview data was performed using NVivo software to identify key themes and patterns.
Main Results:
- Participants (aged 64-86) reported challenges including distance, long interviews, demanding activities, insufficient incentives, and lack of involvement in research planning.
- Unmet expectations regarding healthcare access and treatments were a source of dissatisfaction, alongside poor communication of study findings.
- Despite challenges, participants showed willingness for future research, valuing increased dementia knowledge, cognitive activities, and effective dissemination of results.
Conclusions:
- Aligning research with a patient-participatory approach is essential for improving satisfaction and retention.
- Ensuring transparency, fair compensation, and effective dissemination of findings are critical for ethical and impactful research in resource-constrained settings.
- Addressing participant expectations and communication gaps can foster trust and encourage continued involvement in dementia research.
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