Oralcanreg registry: development and evaluation of an oral and lip squamous cell cancer registry

The project aims to develop and evaluate a cancer registration system specifically designed for lip and oral squamous cell cancer.

First, a questionnaire created by the researcher was used to extract the registry design information pieces. Second, we designed the registry system using a variety of tools and technologies. PHP is selected as the server-side programming language, MariaDB is selected as the database management system, and CentOS 8 is selected as the base system. Web pages are designed and interacted with by users using HTML, CSS, and JavaScript. Thirdly, 21 clinical specialists who are the system's end users assessed the system using a standard questionnaire.

Patient demographic and clinical data, information about medications administered, preliminary diagnostic evaluations, biopsy results, diagnosis-related tumor staging, clinical tumor features, surgical procedures, histopathological tumor features, pathologic stage classification, radiotherapy information, follow-up data, and disease registry functionalities are the main Minimum Data Sets (MDSs). The system is called "Oralcanreg," which is an acronym for the Oral Cancer Registry system. The software that was developed got data that was not always complete in all parts. The lowest one, "Diagnostic assessment," only made up 0.47% of the total data and had 96.8% missing values. This could be because these evaluations were not done or not recorded. Based on the average ratings for the system's overall scores in the [3-5] range, it can be said that the people who took part in the study regarded the registry's total function as "good."

Disease registration design and implementation provide benefits such as timely access to medical records.