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Dementia Care Research and Psychosocial Factors
Jessica Russell1, Paula C Fletcher1
1Wilfrid Laurier University, Waterloo, ON, Canada.
Alzheimer'S & Dementia : the Journal of the Alzheimer'S Association
|December 25, 2025
Summary
Caregivers for persons with dementia face community and societal barriers when aging in place. Addressing these systemic issues is crucial for improving dementia care and support at home.
Area of Science:
- Gerontology
- Dementia Care
- Qualitative Research
Background:
- Most Canadians with dementia live at home, supported by family caregivers.
- Aging in place presents unique challenges for individuals with dementia and their caregivers.
- The social ecological model was used to explore these challenges.
Purpose of the Study:
- To examine the lived experiences of persons with dementia and their caregivers aging in place.
- To identify barriers encountered by this population.
Main Methods:
- Qualitative study involving in-depth, semi-structured interviews with 14 caregivers.
- Phenomenology guided the research to accurately depict lived experiences.
- Credibility enhanced through field notes, member checks, and triangulation.
Main Results:
- The social ecological model effectively categorized barriers to aging in place.
- A key theme, "They don't make it easy," highlighted community and societal obstacles.
- Caregivers reported unmet needs and systemic issues impacting care provision.
Conclusions:
- The study illuminates the profound impact of systemic issues on dementia care at home.
- Caregiver and patient experiences underscore the need for healthcare policy reform.
- Promoting successful aging in place requires addressing identified systemic barriers.
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