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Community-for-Care: An Integrated Response to Informal Post-Caregivers.

Catarina Inês Costa Afonso1, Ana Spínola Madeira1, Alcinda Reis1

  • 1RISE-Health, Santarém School of Health, Polytechnic Institute of Santarém, Quinta do Mergulhão Srª da Guia, 2005-075 Santarém, Portugal.

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PubMed
Summary

Informal post-caregivers need support after caregiving ends. A new framework, Community-For-Care, addresses their invisibility and needs through compassion, coordinated action, and care literacy.

Keywords:
bereavement supportcare literacycommunity healthcompassionate communitiescoordinated careinformal post-caregiverssupport network

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Area of Science:

  • Healthcare
  • Sociology
  • Community Support

Background:

  • Informal caregivers transition to post-caregivers, often facing invisibility and unmet needs.
  • Post-caregivers require support for identity reconstruction and bereavement.
  • Existing models inadequately address the post-caregiving phase.

Purpose of the Study:

  • To design a support network for informal post-caregivers.
  • To explore diverse stakeholder perceptions regarding post-caregiver support.

Main Methods:

  • Qualitative inductive study using three online focus groups (n=15).
  • Participants included healthcare professionals, informal caregivers, post-caregivers, and civil society members.
  • Narrative Medicine-informed approach and thematic analysis were employed.

Main Results:

  • The Community-For-Care concept emerged, addressing the post-caregiving transition.
  • Three axes structure the concept: Compassion, Coordinated Action, and Care Literacy.
  • This framework mobilizes community forces to support post-caregivers' reintegration.

Conclusions:

  • Community-For-Care extends compassionate communities by focusing on post-caregiver needs.
  • Reinforcing compassion, coordinated action, and care literacy aids post-caregiver well-being.
  • This model enhances post-caregiver recovery and reduces strain on formal services.