Defining the user needs for an assistive pediatric hand exoskeleton: An Italian explorative survey

Children with neuromotor disorders often experience hand impairments that limit independence in daily tasks as well as the acquisition of new skills. Robotic aids like hand exoskeletons can improve function, but many designs fail to meet user needs, reducing adoption. This study collected parental feedback to guide the development of user-centered hand exoskeletons. An anonymous online survey was distributed to the parents of children with neurological disorders and previously treated at IRCCS E. Medea - Associazione "La Nostra Famiglia" in Bosisio Parini, Italy. Only parents of children with upper limb impairments were invited to answer. The survey explored their perceptions of hand exoskeletons, focusing on functional needs, user-friendliness, and training expectations. A total of forty-six surveys were completed, of which three were incomplete and therefore excluded. Of the forty-three considered, 76.3% expressed interest in a hand exoskeleton for their child, identifying dressing, hygiene, and eating as key activities to address. Key issues in the development of an exoskeleton for the parents were weight, comfort, associated aesthetics and trust. User feedback emphasizes the need for comfortable, lightweight designs with aesthetic appeal to reduce stigma. Parents prioritized functional benefits for daily activities over recreational use.