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Updated: Jan 16, 2026

Control of Eating Behavior Using a Novel Feedback System
Published on: May 8, 2018
Ignorance culture and eating disorders: lived experience analysis of alarms being ignored
1Independent Researcher and Patient, Cardiff, UK.
Abstract:
Summary Despite co-produced guidelines and actions recommended by statutory bodies, there has been a persistent lack of progress in improving the quality of healthcare for those with eating disorders in the UK. Drawing on multiple evidence sources, including lived experience, the author analyses reasons for this. The concept of an 'ignorance culture' is theorised as a key barrier, defined as cultural practices that uphold systemic failures by ignoring concerns that harm clinicians, patients, caregivers and wider society. A shift towards a 'responsibility culture' is proposed, with recommendations aimed at creating greater accountability, shared learning, transparency and reflexivity. Prioritising cultural change is central to improving the quality of care for everyone affected by eating disorders.
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