"It was like everything happened at once": Interviews with parents about having a child with intellectual disability
Constanza López Radrigán1, Paulina S Arango Uribe2, Fernanda Gatica Ces1
1Millennium Institute for Care Research, Camino de la Posada 13.455, Las Condes, Santiago, Chile.
Abstract:
This article explores the experiences of parents of children and adolescents with intellectual disability who exhibit behaviours that challenge (BtC). Using a qualitative approach, fifteen mothers and three fathers participated in in-depth interviews, which were coded using thematic analysis. We found three themes: (1) parents' experiences raising a child with intellectual disability and BtC, (2) parents' attributions regarding their child's BtC, and (3) parents' perceptions about factors that have supported or hindered their role as parents. Findings offer a situated account of experiences shaped by children's needs and broader sociocultural and structural dynamics. This research highlights how parenting a child with intellectual disability and BtC is not solely a matter of individual or familial responsibility, but it is embedded in collective social arrangements. This contributes to a contextualised understanding of parenting processes in complex situations, promoting the development of family-centred and culturally relevant supports within the Chilean context.
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