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Development of a Multidisciplinary Adolescent and Young Adult Program at a Large Academic Cancer Center.
Michael E Roth1, Wendy Griffith1, Eunju Choi2
1Division of Pediatrics, The University of Texas MD Anderson Cancer Center, Houston, TX.
A specialized cancer program for adolescents and young adults (AYAs) improved care coordination and addressed unmet needs. High patient satisfaction and program growth demonstrate the model
Area of Science:
- Oncology
- Adolescent and Young Adult (AYA) Medicine
- Cancer Survivorship
Background:
- Adolescents and young adults (AYAs) with cancer experience unique challenges not adequately met by pediatric or adult oncology services.
- Developing specialized programs is crucial for addressing the distinct medical, psychosocial, and survivorship needs of AYAs with cancer.
Purpose of the Study:
- To describe the development, structure, and growth of a multidisciplinary AYA oncology program at a major academic cancer center.
- To present initial data on patient satisfaction and program reach within this specialized AYA oncology service.
Main Methods:
- A retrospective descriptive evaluation of the AYA Program at MD Anderson Cancer Center was conducted.
- The program offers integrated services including navigation, oncofertility counseling, medical/survivorship care, psychosocial support, genetic counseling, and nutrition.
- Data were sourced from electronic health records, patient satisfaction surveys, and participation in AYA programming.
Main Results:
- The AYA program served over 1,600 unique AYAs in 2024, with a 12% annual increase in volume and 43% of visits via telehealth.
- The patient population had a mean age of 29, with females comprising 61%. Key referring specialties included pediatrics, breast oncology, lymphoma, sarcoma, and gynecologic oncology.
- Patient satisfaction was high (98% rated experience as good/excellent), with expanded mental health services and structured peer support activities.
Conclusions:
- An integrated, multidisciplinary AYA oncology program effectively expands access to specialized care and addresses unmet needs across the cancer continuum.
- Centralized AYA programs streamline care coordination and provide age-specific supportive cancer care.
- This model offers a scalable framework for institutions seeking to improve cancer care delivery and survivorship support for AYAs.
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