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Juvenile Idiopathic Arthritis Registry at King Abdullah Specialized Children's Hospital (JIAR-KASCH) in Riyadh, Saudi

Jubran T Alqanatish1,2,3, Abdullah I Almojali1,2,3, Wejdan M Algbaiwi4

  • 1College of Medicine, King Saud Bin Abdulaziz University for Health Sciences, Riyadh, Saudi Arabia.

Saudi Medical Journal
|February 2, 2026
PubMed

Insights

A new registry of juvenile idiopathic arthritis (JIA) cases at KASCH in Riyadh has been established, profiling epidemiology and treatment. This framework supports national pediatric rheumatology registries for better disease monitoring.

Area of Science:

  • Pediatric Rheumatology
  • Clinical Data Management
  • Epidemiological Research

Background:

  • Juvenile idiopathic arthritis (JIA) is a complex autoimmune disease requiring long-term management.
  • Establishing comprehensive patient registries is crucial for understanding disease patterns and improving care.
  • The King Abdullah Specialized Children's Hospital (KASCH) initiated a registry to capture JIA data.

Purpose of the Study:

  • To create and maintain an up-to-date registry of juvenile idiopathic arthritis (JIA) cases.
  • To detail the methodology employed in building the JIA registry.
  • To provide insights into JIA epidemiology, clinical characteristics, and treatment in Saudi Arabia.

Main Methods:

  • Retrospective and prospective data collection from August 2021.
  • Utilized Hospital Information System and REDCap platform for data capture.
  • Included sociodemographic, clinical, laboratory, imaging, and medication data for JIA patients at KASCH.

Main Results:

  • The registry included 240 JIA patients by December 2024.
  • Median age at presentation was 8 years, with 79% from central Saudi Arabia.
  • Oligoarthritis (32.9%) and systemic JIA (25.8%) were common subtypes; anti-TNF agents were the most used biologics (62.5%).

Conclusions:

  • The JIAR-KASCH registry offers a detailed profile of JIA in Saudi Arabia.
  • The established framework can guide the development of national pediatric rheumatology registries.
  • Facilitates robust data collection and long-term monitoring for JIA.
Abstract

Keywords:
Juvenile idiopathic arthritisPediatricsRegistryRheumatologySaudi Arabia

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