Enhancing Caregivers' Quality of Life Through a Web-Based Person-Centered Solution (TechQoL4Carers): Protocol for a...

Area of Science:

• Gerontology and Health Informatics
• Social Sciences and Caregiving Studies

Background:

• Informal caregiving presents significant social challenges, impacting caregivers' quality of life (QoL) across mental, physical, economic, and social domains.
• There is a growing need for person-centered health and social care systems to support informal caregivers, promoting their QoL, health, and empowerment.
• Technology offers a promising avenue for delivering personalized services to enhance caregiver well-being.

Purpose of the Study:

• To develop and evaluate an innovative, care-centered technology solution, the CuidaconTIC platform, aimed at improving informal caregivers' QoL.
• The study seeks to enhance caregivers' perceived impact of care, occupational balance, health self-management, and empowerment through technology integration.
• To refine the CuidaconTIC platform using a participatory design process, ensuring it meets the needs of caregivers.

Main Methods:

• A mixed-methods, single-arm pilot trial involving 54 informal caregivers using the CuidaconTIC web platform and a Xiaomi Smart Band 7 for 3 months.
• Participants engaged in a co-design and validation process of the technology, with data collected via standardized assessments (e.g., EQ-5D-5L, Zarit Burden Interview) and custom tools (Satisfaction-Q, My week-Q).
• The study incorporated wearable data (physical activity, sleep) and qualitative interviews to provide a comprehensive understanding of usability, satisfaction, and impact on caregiver variables.

Main Results:

• Data collection occurred between May 2024 and March 2025, with 62 participants recruited by October 2025.
• The study protocol was submitted after data collection but prior to analysis.
• Publication of results is anticipated by June 2026.

Conclusions:

• The TechQoL4Carers project (CuidaconTIC platform) addresses the social challenge of caregiver QoL, focusing on reducing the digital divide and promoting inclusion.
• The person-centered and participatory approach ensures technology is developed around the needs of caregivers and the care recipient.
• The initiative aims to empower caregivers and improve their overall well-being through accessible technological solutions.