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Demoralization in clinical settings: A scoping review of measurement tools and psychometric properties
Rongyu Hua1, Jinfeng Zhu2, Jinfeng Zhu3
1Zhejiang Cancer Hospital, Hangzhou Institute of Medicine (HIM), Chinese Academy of Sciences, Hangzhou, Zhejiang 310022, China.
Background:
Demoralization is a multifaceted clinical construct, and several measurements have been developed to assess demoralization, while no study has systematically mapped these measurement approaches.
Objectives:
To map existing measurements for assessing demoralization in clinical settings.
Methods:
A scoping review was conducted following the Joanna Briggs Institute (JBI) methodology. Electronic databases, including PubMed, The Cochrane Library, PsycINFO, Embase, and Web of Science, were searched January 2026. The characteristics of included studies, measurement, and psychometric properties were summarized.
Results:
A comprehensive analysis identified fourteen measures that were used to assess demoralization across the included studies. These measures are systematically categorized into Three key domains: dimensional self-report scales, multi-symptom screening, diagnostic measure. The demoralization scale (DS) was the most widely used measurement and existed in multiple versions that varied by length and language. Eight core dimensions were consistently associated with demoralization: loss of meaning and purpose, dysphoria, disheartenment, sense of failure, distress, helplessness, subjective incompetence, and coping ability. Full scales generally demonstrated stronger internal reliability and showed evidence of content, construct, criterion, convergent, and discriminant validity. Common limitations included unclear criteria for score interpretation.
Conclusion:
This review outlines the strengths and limitations of existing demoralization measurements in clinical settings, providing guidance for clinicians and researchers in selecting appropriate tools. It also highlights the need for standardized cutoff points to improve score interpretation.
Implications:
The findings may serve as a valuable resource for clinicians and researchers, supporting informed selection of the most appropriate tools for patient care and research.
Summary:
What is known about the subject? What the paper adds to existing knowledge? What are the implications for practice?
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