What Is Important to Patients? A Mixed Methods Study to Understand Patient Experience Commonalities Across Three...

Area of Science:

• Health Services Research
• Patient-Reported Outcomes
• Qualitative Research

Background:

• Patient experience data (PED) collection methods often lack standardization.
• Identifying commonalities in patient experiences across diverse conditions is crucial for improving data collection.

Purpose of the Study:

• To identify commonalities in patient health and daily life impacts across different medical conditions and their treatments.
• To explore patient experiences with asthma, colorectal cancer, and multiple sclerosis.

Main Methods:

• Qualitative data collected via virtual, in-depth interviews with 24 US adults (8 per condition).
• Semi-structured interview guide adapted from the National Health Council's Map My Experience Toolbox.
• Concept elicitation and prioritization of impacts using follow-up interviews and Voice-of-the-Patient (VoP) reports.

Main Results:

• Common symptoms across conditions include emotional health issues (95.8%), fatigue (83.3%), and pain (54.2%).
• Function-related impacts include physical mobility (83.3%), daily activities (79.2%), and work life (75.0%).
• Condition-specific impacts were identified, highlighting disease nuances.

Conclusions:

• A preliminary set of cross-cutting impacts was identified across three conditions.
• These findings can inform the standardization of patient experience data (PED) collection.
• Condition-specific impacts remain important and should be considered in PED.