Learning powered mobility: caregiver perceptions of young children's capabilities and device impact

Self-initiated mobility experiences are critical for young children with disabilities and may be augmented through powered mobility (PM). However, access to PM for young children (<3 years old), remains limited due to multiple environmental, design, and attitudinal factors. The purpose of this study was to understand caregiver perceptions of PM intervention following a 12-session trial of a novel PM device.

Ten caregivers (4 M/6F) of children with cerebral palsy (Gross Motor Function Classification System IV-V) and other developmental disabilities (21.8 ± 5.9 months). Children participated in 12 in-lab driving sessions (exploratory or goal directed) using the Explorer Mini (Permobil AB, Sweden). Exit interviews were conducted with caregivers at the final visit, transcribed verbatim, coded inductively, and analysed until themes emerged.

Four themes emerged from the data: (1) Changing views of capability and adaptability; (2) Emerging autonomy; new skills in and out of the device; (3) Clear need and benefit with some drawbacks; and (4) Lingering stigma and uncertainty.

PM trial positively shifted caregiver's perceptions of both PM in general and their child's capabilities, with a desire for greater access to PM at home to support development. These beliefs remained juxtaposed with lingering stigma for some caregivers about PM devices, and a stated desire for more modifiable PM options for children with different positioning or access needs.