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An NP-led bowel management program for patients with spina bifida

Celicia Little1, Nicole Allentuck1, Christina P Ho1

  • 1Children's National, United States.

Journal of Pediatric Urology
|February 10, 2026
PubMed

Insights

A nurse practitioner-led program improves bowel management for over 250 children with neurogenic bowel dysfunction (NBD). This holistic approach enhances quality of life and reduces complications through personalized care and family engagement.

Area of Science:

  • Pediatric Gastroenterology
  • Neuroscience
  • Nursing Practice

Background:

  • Neurogenic bowel dysfunction (NBD) significantly impacts children's quality of life.
  • Management of NBD requires a comprehensive, multidisciplinary approach.
  • Nurse practitioners (NPs) can play a crucial role in managing chronic pediatric conditions.

Purpose of the Study:

  • To describe the structure and outcomes of a nurse practitioner-led bowel management program for children with NBD.
  • To highlight the benefits of holistic, individualized care in managing pediatric NBD.
  • To demonstrate how NP-led programs enhance accessibility and family support.

Main Methods:

  • Program serves over 250 children aged 0-22 years with NBD.
  • Utilizes holistic assessment of physical, emotional, and social needs.
  • Employs individualized treatment plans, evidence-based protocols, and close follow-up.
  • Facilitates interdisciplinary collaboration and continuous family engagement.

Main Results:

  • Improved quality of life for children and families.
  • Enhanced self-management skills among patients.
  • Reduced incidence of fecal incontinence.
  • Decreased emergency room visits and hospitalizations related to constipation.

Conclusions:

  • NP-led programs are effective in managing pediatric NBD.
  • Holistic and individualized care improves patient outcomes.
  • Family engagement and interdisciplinary collaboration are key to success.

Keywords:
Bowel ManagementBowel Management ProgramNeurogenic bowelNurse PractitionerSpina bifida

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