How to build home based stroke rehabilitation using participatory action research: lessons learned from developing...

This study aims to identify lessons learned regarding: 1) regional factors influencing the development and implementation of home-based stroke rehabilitation (HBSR) networks, during participatory action research (PAR) and 2) the role of the PAR-facilitator in this process. By developing a roadmap based on the lessons learned, we aim to support PAR-facilitators in developing HBSR using regional networks.

In each region, data were collected through individual communication, group discussions, process and outcome evaluations, public consultations, and the PAR-facilitator's logbook. Ending each project, regional evaluations and logbooks were synthesized into a process narrative. Key lessons were drawn through critical reflection sessions and translated into a revised process description (roadmap).

The study showed that motivated professionals, available preconditions for stroke care coordination, and interprofessional collaboration, influenced HBSR implementation. Participants reported the PAR-facilitator playing a crucial role in process monitoring and facilitating information, collaboration and motivation. Also, PAR-methods were considered valuable. The lessons learned resulted in a roadmap describing recommended actions, methods, key considerations, and questions to support reflexivity.

PAR is a promising approach for developing and implementing HBSR networks. Project success depends on prerequisites in context, professionals' motivation and collaboration and guidance by a competent PAR facilitator.