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COPE-EMBRACE: Coping with stress after encephalitis using real-time assessment.

K Fifield1, R Thomas1, E Dawe-Lane2

  • 1Department of Psychology, Institute of Psychiatry, Psychology and Neuroscience, King's College London, London, UK.

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Summary
This summary is machine-generated.

Ecological momentary assessment (EMA) is feasible for tracking mood and coping in adults post-encephalitis. This method reveals links between coping styles and depression, offering potential for stress management interventions.

Keywords:
Ecological momentary assessmentencephalitisexperience sampling methodinterviewsstress

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Area of Science:

  • Neuroscience
  • Psychology
  • Public Health

Background:

  • Encephalitis can lead to acquired brain injury, causing cognitive deficits, fatigue, and increased daily stress.
  • Understanding real-time stress coping mechanisms and their link to depression in post-encephalitis populations is limited.
  • Traditional self-report assessments have limitations; Ecological Momentary Assessment (EMA) offers a potential solution.

Purpose of the Study:

  • To evaluate the feasibility and acceptability of collecting EMA data on mood and coping in adults post-encephalitis.
  • To explore the relationship between coping styles and depression levels over time using EMA data.
  • To identify barriers and facilitators to EMA use in this population.

Main Methods:

  • Twenty adults post-encephalitis completed daily and self-initiated EMA for mood and coping over four months.
  • A linear mixed-effects model analyzed the relationship between coping and depression.
  • Framework analysis of post-study interviews assessed the acceptability of the m-Path app and EMA procedures.

Main Results:

  • High average daily compliance (79.3%) demonstrated EMA feasibility, though self-initiated EMA use was low.
  • Significant relationships were found between individual coping styles and depression levels over time.
  • Qualitative analysis revealed two key themes: encephalitis's impact on stress response and EMA experiences (barriers/facilitators).
  • The m-Path app and daily mood monitoring via EMA were found acceptable.

Conclusions:

  • Long-term daily EMA is feasible for monitoring mood and coping in adults with encephalitis.
  • Patient and public involvement is recommended for refining EMA suitability.
  • Adapted EMA could serve as a valuable psychological intervention for stress coping in daily life post-encephalitis.