Empowering People With Haemophilia: A Mobile Solution for Self-Management

Area of Science:

• Digital Health
• Patient Self-Management
• Haemophilia Care

Background:

• Haemophilia is a congenital bleeding disorder necessitating significant patient self-management.
• Mobile applications offer a promising avenue to support individuals with haemophilia in managing their condition.

Purpose of the Study:

• To design and evaluate a mobile application tailored for the self-management of haemophilia.
• To identify and incorporate essential information-educational needs and functional capabilities for the app.

Main Methods:

• A two-phase approach involving literature reviews and app store/organization website searches.
• Needs assessment through physician and patient questionnaires, followed by prototype development.
• Usability evaluation of the application prototype with 17 haemophilia patients using the Questionnaire for User Interface Satisfaction.

Main Results:

• Sixty-two information-educational needs and capabilities were integrated into the app design.
• The application facilitates recording of health data, provides educational content, and includes features for reminders, treatment plans, therapist communication, and notes.
• Patients rated the application's usability at a "good" level.

Conclusions:

• The developed haemophilia self-management mobile application effectively addresses patient educational needs.
• The app has the potential to enhance the quality of life for individuals with haemophilia by supporting their self-management efforts.