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Novel Web-Based Technology to Promote Goal-Setting in Complex Chronic Illness: Randomized Controlled Trial.

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Summary
This summary is machine-generated.

A novel web-based tool, GoalKeeper, successfully promoted shared goal-setting for children with medical complexity, improving care quality. This digital intervention sustained goal quality between visits, combating declines seen in usual care.

Keywords:
care coordinationchildren with medical complexitychronic caredigital healthfamily-centered care

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Area of Science:

  • Pediatric Healthcare
  • Health Informatics
  • Patient-Centered Care

Background:

  • Shared goal-setting is crucial for improving care quality in children with medical complexity.
  • Few studies have evaluated interventions to enhance goal-setting efficacy.
  • Children with medical complexity often experience declining care quality between clinical visits.

Purpose of the Study:

  • To evaluate a novel internet-based tool, GoalKeeper, designed to promote shared goal-setting in pediatric complex care.
  • To assess the impact of GoalKeeper on the quality of goal-setting and overall care quality.

Main Methods:

  • A randomized stepped-wedge trial comparing GoalKeeper (intervention) to usual care.
  • Inclusion of 67 parent-child dyads across primary and subspecialty clinics.
  • Utilized the Patient Assessment of Care for Chronic Illness Care goal-setting domain to measure outcomes at baseline and 1 month.

Main Results:

  • The intervention group using GoalKeeper showed sustained quality of goal-setting at follow-up, unlike the control group.
  • Care quality also remained stable in the intervention group, while declining in the control group.
  • The GoalKeeper tool was successfully used by most parents during clinical encounters.

Conclusions:

  • Family-centered goal-setting, facilitated by digital tools like GoalKeeper, can mitigate the decline in care quality for children with medical complexity.
  • Digital tools show feasibility for improving family-provider communication regarding patient goals.
  • GoalKeeper represents a promising intervention for enhancing shared decision-making in pediatric complex care.