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Updated: Feb 24, 2026
07:13
Digital Home-Monitoring of Patients after Kidney Transplantation: The MACCS Platform
Published on: April 12, 2021
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My Kidney T.R.E.K. - Thinking, Reflecting, and Empowering Kidney Transplant Patients, through technology
Julia C Dunbar1, Wanda Pratt1, Lily Jeffs1
1University of Washington, Seattle, WA.
AMIA ... Annual Symposium Proceedings. AMIA Symposium
|February 23, 2026
Summary
Young kidney transplant patients need digital tools for self-management. A storytelling prototype helped adolescents reflect on their health journey, boosting confidence and self-awareness for better chronic condition management.
Area of Science:
- Pediatric Nephrology
- Digital Health
- Adolescent Medicine
Background:
- Adolescents and young adults with kidney transplants require support for transitioning to independent self-management.
- Effective self-management necessitates tools that promote both skill-building and critical reflection.
Purpose of the Study:
- To develop and evaluate a digital prototype aimed at facilitating reflection on the transplant journey for youth.
- To gather insights for designing future digital health tools for adolescent chronic condition self-management.
Main Methods:
- A digital prototype utilizing storytelling for reflection was developed.
- The prototype was evaluated with 23 participants (13 youth, 10 caregivers).
Main Results:
- Participants found the prototype valuable for reflecting on past experiences, understanding their present health status, and planning for the future.
- Youth participants reported enhanced self-awareness and increased confidence in managing their health post-transplant.
Conclusions:
- Digital storytelling tools can effectively support self-reflection and self-management in adolescents with kidney transplants.
- Design recommendations are provided for future digital health interventions targeting youth with chronic conditions.
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