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The Cerebral Palsy Link Worker (CP LINK) study: Protocol for a feasibility study with integrated process evaluation.

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This study evaluates a new CP link worker role for adults aged 40+ with cerebral palsy (CP), aiming to improve community care and address complex ageing needs. The findings will inform better support for this aging population.

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Area of Science:

  • Neurology
  • Public Health
  • Gerontology

Background:

  • Cerebral palsy (CP) is the leading cause of lifelong physical disability in the UK.
  • Aging individuals with CP face amplified health and social inequalities.
  • Current community care by General Practitioners (GPs) often lacks specialization for the complex needs of aging adults with CP.

Purpose of the Study:

  • To evaluate a co-developed specialized CP link worker role.
  • To support adults aged 40 and older who are aging with CP.
  • To assess the role's effectiveness in North Central London over a one-year period.

Main Methods:

  • A feasibility and process evaluation of the CP link worker role.
  • Data collection at baseline, 1 week, and 3 months from service users.
  • Inclusion of recruitment/retention rates, intervention acceptability, data quality, and stakeholder experiences.

Main Results:

  • (Study is ongoing, results not yet available)

Conclusions:

  • (Study is ongoing, conclusions not yet available)