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Multidisciplinary Management of Epidermolysis Bullosa
James A Feinstein1,2, Caitlin Cacioppo3, Liliane Diab1,3
1Department of Pediatrics, University of Colorado Anschutz School of Medicine, Aurora, Colorado, USA.
Pediatric Dermatology
|February 24, 2026
Summary
Epidermolysis bullosa (EB) is a complex skin disorder requiring coordinated care. This article details a multidisciplinary clinic
Area of Science:
- Dermatology
- Genetics
- Pediatrics
Background:
- Epidermolysis bullosa (EB) presents as a group of rare genetic blistering skin disorders.
- Severe forms of EB, including EB simplex, junctional EB, and recessive dystrophic EB, manifest as multisystemic conditions.
- Management of EB patients necessitates a coordinated, multidisciplinary approach due to diverse complications.
Purpose of the Study:
- To describe a comprehensive, holistic, and patient-centered care model for Epidermolysis Bullosa.
- To highlight the collaborative efforts within a specialized multidisciplinary EB clinic.
Main Methods:
- Implementation of a multidisciplinary EB clinic model.
- Integration of specialists including dermatology, pediatrics, occupational/physical therapy, nutrition, social work, and pain psychology.
- Focus on collaborative management of patient needs.
Main Results:
- Establishment of a coordinated care framework for EB patients.
- Holistic management addressing cutaneous, extracutaneous, and psychosocial aspects.
- Improved patient care through interdisciplinary teamwork.
Conclusions:
- A multidisciplinary, patient-centered approach is crucial for managing complex Epidermolysis Bullosa cases.
- Collaborative care models effectively address the multifaceted needs of EB patients.
- Specialized EB clinics facilitate comprehensive management of this multisystem disorder.
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