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Palliative care: Seduced by wishful thinking or on safe ground?
Johanna Swenne1, Christoffer Johansen2, Lars Henrik Jensen1
1Department of Oncology, Vejle Hospital, University Hospital of Southern Denmark, Vejle, Denmark; Institute of Regional Health Research, Faculty of Health Sciences, University of Southern Denmark, Odense, Denmark.
Early palliative care (PC) integration in oncology lacks robust evidence, despite strong advocacy. Current models may not be generalizable, necessitating a shift towards shared responsibility in cancer care.
Area of Science:
- Oncology
- Palliative Care
- Health Services Research
Background:
- Global advocacy promotes early and integrated palliative care (PC) in oncology as a clinical imperative and human right.
- The empirical evidence supporting widespread PC integration is limited and context-specific, contrasting with strong policy rhetoric.
Purpose of the Study:
- To critically examine the gap between normative expectations for early PC integration and the existing evidence base.
- To analyze the limitations and generalizability of current PC trial evidence, particularly for European healthcare systems.
- To propose a reorientation of PC service delivery models in oncology.
Main Methods:
- Analytical paper critically examining existing literature and policy.
- Situating palliative care within broader transformations in cancer care and healthcare principles.
- Analyzing evidence from randomized trials, particularly in high-income settings.
Main Results:
- The evidence base for early PC integration is fragile and primarily derived from limited trials in high-income countries.
- Existing findings are often extrapolated beyond their generalizability, potentially overlooking structural and organizational realities.
- A significant policy-practice gap exists in PC provision across Europe.
Conclusions:
- Prevailing narratives may overstate the robustness and applicability of current PC evidence.
- A shift from specialist-led PC to shared clinical responsibility across oncology and general healthcare is proposed.
- Specialist PC expertise should focus on consultation, education, and leadership rather than parallel service provision.
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