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How do autistic adults experience ageing? A qualitative interview study.

Rebecca Aitken1,2,3, Katherine Berry1,2, Emma Gowen1

  • 1School of Health Sciences, University of Manchester, Manchester Academic Health Sciences Centre, UK.

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Summary
This summary is machine-generated.

Older autistic adults desire autism-informed support for aging well, highlighting fears, adaptive strategies, and the importance of social relationships. Current services are often incompatible, necessitating improved societal understanding and tailored professional recommendations.

Keywords:
ageing wellautismmidlifeold agequalitative researchsupport needs

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Area of Science:

  • Gerontology
  • Autism Spectrum Disorder Research
  • Health and Social Care

Background:

  • Limited research exists on the aging experiences of autistic individuals.
  • Understanding the unique needs of aging autistic adults is crucial for effective support.

Purpose of the Study:

  • To explore middle-aged and older autistic adults' perspectives on aging well.
  • To identify age-related health and social care needs within this population.
  • To determine how services can better support autistic adults in aging.

Main Methods:

  • 17 autistic adults (aged 46-72) were interviewed using semi-structured interviews.
  • Interviews were conducted via Zoom or telephone and analyzed using inductive thematic analysis.
  • Convenience and snowball sampling strategies were employed for participant recruitment.

Main Results:

  • Five themes emerged: possibilities/fears of aging, adaptive strategies, autism acceptance, social relationships, and the need for autism-informed formal support.
  • Participants perceived a poor understanding of autism and aging, with potential increased risks for conditions like dementia.
  • Existing support services were found to be incompatible with autistic characteristics, often due to lack of professional understanding and accessibility issues.

Conclusions:

  • There is a significant need to enhance societal knowledge regarding aging with autism.
  • Services require adaptation to be autism-informed, trauma-informed, and strength-focused.
  • Recommendations include involving autistic individuals in service design and providing peer support for navigation and access.