Key Factors for Quality End-of-Life Care for People With Intellectual Disabilities. A Critical Interpretive Synthesis...

The aim of this review was to develop a theoretical framework to guide understanding of the key factors in quality end-of-life care for people with intellectual disabilities.

A systematic review was conducted using a critical interpretive synthesis methodology and a 'best-fit' framework approach to develop a new theoretical framework. Databases were searched using a wide-ranging search strategy. Broad eligibility criteria were applied. Data were extracted from a purposive sample of relevant papers for the synthesis.

Of 1270 retrieved records, 40 papers were selected for inclusion in the synthesis. From this, a new theoretical framework was developed comprising three themes-'a personal approach to care', 'an involved network' and 'an enabling infrastructure'.

The theoretical framework presented reflects the integration of a range of perspectives and provides a more developed understanding of the key factors in quality end-of-life care for people with intellectual disabilities.