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Empowering Informal Caregivers of Persons With Early-Stage Dementia by Large Language Models: Mixed Methods
Huayu Zhou1, Ziwei Zhu2, Kyeung Mi Oh3
1Department of Information Sciences and Technology, College of Engineering and Computing, George Mason University, Research Hall Building, Room 211, 10401 York River Road, Fairfax, VA, 22030, United States, 1 2062291872.
An enhanced ChatGPT-4o model improved dementia caregiver support by offering more relevant and actionable advice, increasing user satisfaction. The experimental version provided practical guidance, though accuracy and safety did not significantly differ from the baseline.
Area of Science:
- Gerontology
- Health Informatics
- Artificial Intelligence in Healthcare
Background:
- Informal caregivers need accessible knowledge and support for early-stage dementia care.
- Large language models (LLMs) offer potential for caregiving information but carry risks and challenges.
- Improving LLM-generated responses for dementia caregiving requires further exploration.
Purpose of the Study:
- Examine risks and challenges of using baseline ChatGPT-4o for dementia caregiving support.
- Assess how an enhanced ChatGPT-4o, with updated knowledge, can mitigate these issues.
Main Methods:
- Developed two ChatGPT-4o conditions: baseline (C1) and enhanced (C2) using prompt engineering.
- Generated 64 responses to 32 caregiver questions, evaluated by 12 experts on multiple criteria.
- Conducted expert interviews for qualitative insights into response differences and design opportunities.
Main Results:
- Enhanced ChatGPT-4o (C2) showed significant improvements in actionability, relevance, and satisfaction over baseline (C1).
- No significant differences were found in accuracy, intelligibility, trustworthiness, safety, or perceived harm.
- Qualitative analysis highlighted differences in detail, relevance, and actionability, with C2 being more detailed and actionable.
Conclusions:
- Both models provided reasonable and intelligible responses for dementia caregiving.
- The enhanced model offered more relevant, practical, and actionable guidance, leading to higher caregiver satisfaction.
- LLM enhancements show promise in improving dementia caregiving support resources.
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