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Caregiver Codesigned Simulation Training for Paediatric Intellectual Disability Emergency Care
Karl Pobre1,2, Maricel Mariano1, Shefali Jani1,2
1Department of Paediatric Emergency, The Children's Hospital at Westmead, Sydney, Australia.
Background:
Children and young people with intellectual and developmental disabilities (IDD) often face significant challenges in emergency departments (ED), where a high-acuity environment can exacerbate distress, leading to behaviours of concern (BOC). Identifying and managing BOC requires specialised skills, yet many healthcare professionals report a lack of confidence and structured training. Traditional educational models may lack real-world applicability by failing to incorporate the lived experiences of patients and families.
Approach:
The Motivated for Change programme was codeveloped with caregivers to enhance healthcare professionals' ability to identify, mitigate, and de-escalate BOC in children with IDD using simulation-based education (SBE). The programme integrated prelearning modules, interactive lectures, and novel immersive simulations. SBE was codesigned with parents, clinicians and educators to reflect real-world ED challenges and guided child and family-centred approaches. Participants engaged in simulation exercises to practice communication strategies and implement reasonable adjustments in a structured, supportive learning environment.
Evaluation:
Eighty-two ED healthcare professionals participated in 11 simulation sessions. Postsession surveys revealed SBE was effective in consolidating skills in communication and engagement (100%), identifying BOC (99%), preventing escalation (99%) and de-escalation strategies (96%). Ninety-seven percent felt more confident applying reasonable adjustments in clinical practice. Reflexive thematic analysis identified key learnings, including parent partnership, effective communication, early recognition and intervention and environmental modifications.
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