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Family carers' perceived benefits and challenges in the iSupport for dementia program: a qualitative evaluation
Lily Xiao1, Jing Wang2, Huali Wang3
1College of Nursing and Health Sciences, Flinders University, Adelaide, Australia.
Objectives:
To understand family carers' perceived benefits and challenges in a facilitator-led online multicomponent iSupport for dementia program.
Method:
A qualitative evaluation study within a randomised controlled trial. Data were collected in monthly virtual peer support meetings over a 6-month period. Meetings lasting approximately 60 min were recorded and transcribed verbatim for analysis. iSupport facilitators' monthly records were also collected for analysis. A reflexive thematic analysis method was used to analyse the data.
Results:
One hundred and six carers in the intervention group participated in this study. Four themes were identified: 1) Improved mental health; 2) Capabilities to provide person-centred care; 3) Seeking help from others to reduce stresses and burdens; and 4) Challenges to manage severely changed behaviours.
Conclusion:
Carers in the iSupport program believed that engaging with the iSupport program, interactions with peers and iSupport facilitators enabled them to improve their mental health, self-care and capabilities to care for people with dementia. However, systemic factors, such as lack of respite care and specialist dementia care services, undermined their ability to manage the changed behaviours of people with dementia.
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