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Reimagining Caregiving Roles and Challenging Gender Norms: A Husband's Experience with Caring for Wife Living with
Shreemouna Gurung1, Katherine Bertoni2, Lucy Kervin1
1Department of Gerontology, Simon Fraser University, Vancouver, BC, Canada.
Abstract:
Spousal care is a prominent support for persons living with dementia, yet the experiences of men who provide spousal care are understudied. This research explored the experiences of husbands caring for wives with progressive dementia in a community setting. In this paper, the experience of a 63-year-old retired man caring for his wife diagnosed with early onset dementia was explored using a longitudinal qualitative case study approach. Reflexive thematic analysis of interview and narrative diary data produced two themes: (1) The Practical Realities of Caregiving, underscoring the everyday challenges of caregiving and (2) The Emotional Landscape of Caregiving, highlighting the complex emotional journey of caregivers. Findings emphasize the emotional challenges faced by men caregivers and highlight the need for supports that are tailored to men's unique experiences and emotional needs.
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