Priorities for traumatic brachial plexus Injury research: a James Lind Alliance priority setting partnership

Area of Science:

• Neuroscience
• Rehabilitation Medicine
• Patient-Centered Research

Background:

• Traumatic brachial plexus injuries (TBPI) significantly impact arm and hand function and sensation.
• Historically, TBPI research has prioritized clinician and researcher perspectives over patient experiences.
• The James Lind Alliance (JLA) methodology promotes patient and public involvement in setting research priorities.

Purpose of the Study:

• To establish a consensus on future research priorities for adult TBPI.
• To ensure patient, carer, and clinician concerns are central to TBPI research agendas.

Main Methods:

• A JLA Priority Setting Partnership (PSP) involving patients, carers, and clinicians was conducted.
• An initial survey generated 704 questions, refined into 68 summary uncertainties.
• An interim survey and a final workshop prioritized these uncertainties to identify top research needs.

Main Results:

• 154 respondents contributed to the initial survey, leading to 68 summarized research questions.
• 79 respondents prioritized questions in an interim survey.
• A workshop involving 22 participants identified the top 10 TBPI research priorities, emphasizing psychology, physical therapy, and management.

Conclusions:

• The identified research priorities reflect the needs and concerns of patients, carers, and clinicians.
• These findings will guide researchers and funding bodies in directing future TBPI research efforts.
• This patient-centered approach ensures research is relevant and impactful for those affected by TBPI.