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This study offers practical telehealth strategies for serious illness conversations (SIC) in amyotrophic lateral sclerosis (ALS). It introduces the CARE in ALS approach to improve communication for patients with speech impairments.

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Area of Science:

  • Neurology
  • Palliative Care
  • Telehealth Medicine

Background:

  • Telehealth use has surged, particularly post-COVID-19, becoming crucial for amyotrophic lateral sclerosis (ALS) care.
  • ALS progression presents challenges for in-person visits, making telehealth essential for ongoing clinical care and serious illness conversations (SIC).
  • Limited recommendations exist for optimizing telehealth communication in neuropalliative care for ALS patients.

Purpose of the Study:

  • To address the lack of consensus on conducting serious illness conversations (SIC) via telehealth in amyotrophic lateral sclerosis (ALS).
  • To provide practical, evidence-based strategies for healthcare clinicians facilitating SICs in the ALS telehealth setting.

Main Methods:

  • The study presents three case scenarios to illustrate telehealth strategies for SICs in ALS.
  • A specific communication strategy, CARE in ALS, is introduced to aid individuals with speech impairments during telehealth interactions.

Main Results:

  • The CARE in ALS strategy is detailed to support effective telehealth communication, particularly for ALS patients with speech difficulties.
  • Case scenarios demonstrate practical application of telehealth strategies for SICs in ALS.

Conclusions:

  • The study offers guidance for healthcare providers on conducting serious illness conversations (SIC) using telehealth for individuals with amyotrophic lateral sclerosis (ALS).
  • The CARE in ALS strategy provides a framework to enhance communication and support for ALS patients with speech impairments in a telehealth context.