Establishing a Transition Program for Young Adults With Epilepsy

Area of Science:

• Neurology
• Quality Improvement
• Healthcare Transition

Background:

• Transitioning young adults with epilepsy to adult healthcare presents significant challenges.
• Existing healthcare models often lack structured support for this vulnerable population.

Purpose of the Study:

• To develop and implement a roadmap for successful transition of young adults with epilepsy from pediatric to adult neurology care.
• To improve long-term epilepsy management by addressing transition barriers.

Main Methods:

• A Quality Improvement project involving 4 interventions and Plan-Do-Study-Act cycles was conducted.
• Interventions included roadmap development, expectation setting, enhanced communication, and transition documentation.
• The study focused on young adults (18-23 years) with epilepsy and normal cognitive development.

Main Results:

• 70% (72/102) of enrolled patients successfully transitioned to adult neurology care.
• Key barriers identified were missed appointments, communication difficulties, and delayed self-management.
• The program became standard practice and demonstrated sustained effectiveness over two years.

Conclusions:

• The developed roadmap effectively facilitated the transition of young adults with epilepsy to adult care.
• The program empowered young adults to assume responsibility for their lifelong epilepsy management.
• Successful transition is achievable with structured support and addressing identified barriers.