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Navigating prostate cancer together: Partner involvement in shared decision-making.

M B Josefsen1, B Nørby2, K D Steffensen3

  • 1Center for Shared Decision Making, Lillebaelt Hospital, University Hospital of Southern Denmark, Vejle, Denmark.

Patient Education and Counseling
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Summary
This summary is machine-generated.

Partners are vital in medical decision-making, offering support and unique perspectives. Healthcare providers should acknowledge and integrate their needs for improved patient care and shared decision-making (SDM).

Keywords:
PartnersProstate cancerQualitative studyRelativesSDMShared Decision-MakingTriadic

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Area of Science:

  • Medical Sociology
  • Health Psychology
  • Patient-Centered Care

Background:

  • Relatives frequently participate in patient medical decision-making.
  • Meaningful involvement of relatives can improve patient adherence, safety, and overall experience.
  • The role of relatives in Shared Decision-Making (SDM) is under-researched.

Purpose of the Study:

  • To examine perceptions of meaningful partner involvement in medical decision-making.
  • Focus on hospital consultations with prostate cancer patients.

Main Methods:

  • Qualitative study with 72 participants (doctors, nurses, patients, relatives).
  • Data collected via field notes, focus groups, interviews, and workshop responses.
  • Hermeneutic-phenomenological approach to explore lived experiences.

Main Results:

  • Partners fulfill crucial roles: listening, remembering, taking responsibility, and being supportive.
  • Partners and patients exhibit diverse mindsets in decision-making: 'worried and skeptical,' 'positive,' 'need for knowledge,' or 'reserved.'

Conclusions:

  • Partners are integral to a patient's illness journey and decision-making.
  • Healthcare providers must acknowledge and address relatives' needs during consultations.
  • Findings are applicable to enhancing decision-making conversations in various medical contexts.