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Assessing online patient education materials for major lower extremity amputation
Boaz Laor Dec1, Karim Elrakhawy Dec2, Virginie Blanchette3
1Faculty of Medicine and Health Sciences, McGill University, Montréal, Québec, Canada.
Online patient education for major lower extremity amputation (LEA) due to vascular disease often lacks quality and critical information, making it difficult for patients to understand. Developing accessible, high-quality resources is crucial for informed decision-making.
Area of Science:
- Vascular Surgery
- Patient Education
- Health Informatics
Background:
- Major lower extremity amputation (LEA) due to vascular disease presents a significant health burden.
- Effective patient education is vital for managing this condition and supporting shared decision-making.
Purpose of the Study:
- To evaluate the readability, quality, transparency, and clinical content of online patient education materials for major LEA caused by vascular disease.
Main Methods:
- A descriptive audit of online resources was performed, searching 8 terms related to LEA.
- Readability was assessed using 5 validated tools, and quality was evaluated using JAMA and DISCERN criteria.
- Key clinical content elements were analyzed for completeness.
Main Results:
- The 58 included websites had mean readability scores exceeding the recommended sixth-grade level.
- Quality scores were generally fair, with low reporting of authorship, attribution, and disclosure.
- Coverage of essential clinical information, such as alternative procedures and surgical risks, was limited.
Conclusions:
- Online patient education materials for major LEA often exhibit poor readability and quality, lacking crucial clinical details.
- There is an immediate need for the development of high-quality, easily understandable resources to aid patient education and shared decision-making.
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