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Supporting Children With a Chronic Disease and Their Parents When Admitted to Hospital: A Scoping Review of
Lyndsay Jerusha MacKay1,2,3, Nolan Lagrisolal2, Una Chang2
1College of Nursing, Texas A & M, Bryan, Texas, USA.
Insights
This review found that emotional and psychological support is crucial for hospitalized children with chronic diseases and their parents. Comprehensive, multimodal interventions are recommended to address mental health needs during hospitalization.
Area of Science:
- Pediatric Healthcare
- Psychosocial Support
- Chronic Illness Management
Background:
- Hospitalization presents unique challenges for children with chronic diseases.
- Parents of these children also require significant support.
- Existing evidence on psychosocial interventions needs comprehensive synthesis.
Purpose of the Study:
- To conduct a scoping review of psychosocial supports for hospitalized children with chronic diseases and their parents.
- To identify and categorize the types of psychosocial interventions available.
- To summarize the evidence on the effectiveness and delivery of these supports.
Main Methods:
- Adherence to JBI methodology for scoping reviews.
- Extensive literature search across seven databases.
- Screening of over 15,000 titles and abstracts.
- Thematic analysis of psychosocial supports across emotional, informational, social, spiritual, and practical domains.
Main Results:
- 59 studies met the inclusion criteria.
- Emotional and psychological interventions were most prevalent.
- Interventions were often multimodal, delivered in-person by healthcare professionals.
- The majority of interventions demonstrated positive outcomes with no reported harms.
Conclusions:
- Development and implementation of comprehensive, multimodal psychosocial interventions are essential.
- The high frequency of emotional and psychological support highlights critical mental health needs.
- Addressing the mental health impact on children and families is paramount.
Aim:
The aim of this scoping review was to identify, examine, and summarize available evidence regarding psychosocial supports provided to children with a chronic disease when admitted to hospital and their parents.
Method:
The JBI methodology for conducting and reporting scoping reviews was followed. Seven databases were searched, 15 181 titles and abstracts were screened, and data from the included studies were extracted. The psychosocial supports were grouped into the following domains: emotional and psychological, informational, social, spiritual, and practical. Data describing ho the psychosocial support was offered within each domain were thematically analysed.
Results:
A total of 59 studies met inclusion criteria. Emotional and psychological interventions were the most frequently utilized. Most interventions were multimodal, delivered in person, and healthcare professionals and researchers served as primary administrators of the interventions. A vast majority of the interventions yielded positive outcomes, and there were no reported harms.
Conclusion:
Comprehensive and multimodal psychosocial interventions should be developed and implemented among hospitalized children with a chronic disease and their parents. The predominance of emotional and psychological support interventions reflects the critical need to address the mental health impacts of chronic illness and hospitalization on children with a chronic disease and their families.
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