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Respectful language use in multiple sclerosis research outputs supports person-centred care
Connie M S Janiszewski1, Lisa B Grech2
1School of Psychology, Deakin University, Burwood, Victoria, Australia.
None:
There is a disconnect between the language preferences of people with multiple sclerosis (MS) and the language used to refer to them in research outputs. Authors continue to use terms such as "patient" or "sufferer," acronyms such as "PwMS" or "PLwMS," and identity-first language (in contrast to person-first language) when referring to people with MS and their symptoms and comorbidities. Such language may be disrespectful or contextually inaccurate and may influence healthcare interactions in ways that do not align with the principles of person-centred care. Although further research is needed to better understand the complex relationships between demographic and health-related factors and disability language preferences among people with MS, the language used in research outputs should be guided by respect. In this commentary, we encourage authors to carefully consider how people with MS are referred to in relation to their health condition, disability, symptoms, and comorbidities.
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