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A Novel Digital Platform for a Monitored Home-based Cardiac Rehabilitation Program
Published on: April 19, 2019
"It Was a Blur": A Qualitative Study of Barriers to Participation in Cardiac Rehabilitation Among Patients With Heart
Christene DeJong1, Carol Haywood, Joshua Erban
1Author Affiliations: School of Public Health and Health Sciences, University of Massachusetts-Amherst, Amherst, MA (Ms DeJong); Center for Health Services and Outcomes Research, Institute of Public Health and Medicine, Northwestern Feinberg School of Medicine, Chicago, IL; Determinants of Health Division, Department of Medical Social Sciences, Northwestern University Feinberg School of Medicine, Chicago, IL (Dr Haywood); NewYork-Presbyterian Brooklyn Methodist Hospital, Brooklyn, NY (Dr Erban); Division of Hospital Medicine, Department of Medicine, Northwestern University Feinberg School of Medicine, Chicago, IL; MaineHealth Institute for Research and Department of Medicine, MaineHealth, Portland, ME (Dr Lagu); and Department of Healthcare Delivery and Population Sciences, University of Massachusetts Chan Medical School-Baystate, Springfield, MA (Dr Cichon, Dr Pack, and Dr Lindenauer).
Insights
Improving heart failure (HF) patient enrollment in cardiac rehabilitation (CR) requires better timing, content, and quality of CR education. Repetition of information and support for social needs can increase participation.
Area of Science:
- Cardiology
- Rehabilitation Medicine
- Patient Adherence
Background:
- Cardiac rehabilitation (CR) participation rates among eligible heart failure (HF) patients are critically low, with fewer than 10% enrolling.
- Identifying patient-centered factors influencing enrollment is crucial for improving CR uptake in HF populations.
Purpose of the Study:
- To identify patient-centered factors influencing the decision-making process for heart failure (HF) patients regarding enrollment in cardiac rehabilitation (CR).
- To uncover opportunities for enhancing CR participation rates through a deeper understanding of patient perspectives.
Main Methods:
- Qualitative study involving semi-structured interviews with 18 patients with HF referred to CR.
- Interviews explored referral processes, barriers, facilitators, and general perceptions of CR.
- Follow-up interviews assessed CR attendance, with data analyzed using constant comparative analysis.
Main Results:
- Key themes influencing CR attendance included poor recall of inpatient referrals, uncertainty about CR appropriateness, and inconsistent understanding of CR.
- Patients expressed concerns about symptom burden and exercise safety, alongside a strong desire to improve health and longevity.
- Limited memory of inpatient CR referral and education emerged as a significant barrier.
Conclusions:
- The timing, content, and quality of CR education and referral significantly impact HF patient enrollment.
- Referrals made during hospitalization and discharge may have limited impact due to poor patient recall.
- Patients suggested repeated education, support for health-related social needs, and tailored information for the HF population to improve CR likelihood.
Purpose:
Fewer than 10% of eligible patients with heart failure (HF) participate in cardiac rehabilitation (CR). To identify patient-centered opportunities to improve CR participation rates, we identified factors influencing HF patient decisions to enroll in CR.
Methods:
We recruited patients with HF referred to CR from the hospital, clinic, or CR program to participate in interviews focusing on the referral process, barriers, and facilitators to participation and general perceptions of CR. Patients who had not yet attended CR were interviewed 8 weeks later to assess CR attendance. Interviews were audio-recorded, transcribed, and analyzed using constant comparative analysis.
Results:
We enrolled 18 patients; 5 in CR, 9 referred to CR during a hospitalization, and 4 referred to CR from the clinic. We conducted follow-up interviews with 5 patients. Emergent themes impacting CR attendance included (1) limited memory of inpatient CR referral and education; (2) uncertainty of whether CR is appropriate for them; (3) inconsistent understanding of what CR entails; (4) concerns about symptom burden; (5) fears about safety of exercise; and (6) desire to get healthy and stay alive.
Conclusions:
Among patients with HF referred to CR, the timing, content, and quality of CR education and referral appear important for encouraging enrollment. Many patients could not recall documented inpatient conversations about CR, raising questions about the impact of referrals made during hospitalization and discharge for patients with HF. Patients suggested that repetition of education would increase the likelihood of enrollment, along with support to address health-related social needs and eligibility specific to the HF population.
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