Feasibility and Acceptability of Remote Music Therapy for Cognitively Impaired Children Receiving Palliative/Complex

Terrah Foster Akard1, Mary S Dietrich1,2, Mary Jo Gilmer1

  • 1Vanderbilt University, Nashville, Tennessee, USA.

Insights

Home-based remote music therapy (RemoteMT) is a feasible and acceptable intervention for children with medical complexity (CMC) and their families, showing promise for improved child and parent outcomes.

Area of Science:

  • Palliative Care
  • Child Health
  • Mental Health

Background:

  • Music therapy is a palliative care approach that can improve outcomes for children with medical complexity (CMC), their parents, and families.
  • CMC are often excluded from specialist services due to cognitive and communication challenges, and limited accessibility in non-metropolitan areas.
  • Many CMC are homebound and cannot access traditional interventions, necessitating alternative delivery methods.

Purpose of the Study:

  • To examine the feasibility and acceptability of a home-based, remote music therapy (RemoteMT) intervention.
  • To assess the impact of RemoteMT on cognitively impaired CMC receiving palliative or complex care, their parents, and families.

Main Methods:

  • A one-group pre-/post-intervention study design was employed.
  • Seventeen dyads of CMC and their parents participated in the study, with all activities conducted in their homes.
  • Parents completed outcome measures at baseline and six weeks post-intervention to assess child, parent, and family outcomes.

Main Results:

  • The RemoteMT intervention was found to be feasible in terms of recruitment, data collection, and delivery.
  • Improved child outcomes, including reduced physical stress (p = 0.027), were observed.
  • Positive trends in parent and family outcomes, such as increased family cohesion (p = 0.095), were noted.

Conclusions:

  • Remote music therapy (RemoteMT) is a feasible and acceptable intervention for cognitively impaired CMC and their parents.
  • The intervention shows promise for improving child and parent outcomes in palliative and complex care settings.
  • Further large-scale efficacy testing is recommended to confirm these findings.
Abstract

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