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Caregiver Perspectives on Priorities and Barriers in Applied Behavior Analysis Service Delivery for Autistic

Joy S Pollard1,2, Kristin M Hustyi3, Charlotte K Y Yan2

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Caregivers face long waits and provider shortages for applied behavior analysis (ABA) services. Improving telehealth and school integration are key priorities for autistic individuals and their families.

Keywords:
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Area of Science:

  • Autism Spectrum Disorder Research
  • Behavioral Health Services
  • Caregiver Support Systems

Background:

  • Applied Behavior Analysis (ABA) is a common intervention for autistic individuals.
  • Caregiver experiences significantly impact service accessibility and effectiveness.
  • Understanding caregiver priorities is crucial for improving ABA service delivery.

Purpose of the Study:

  • To identify treatment and service delivery priorities for caregivers of autistic individuals receiving ABA.
  • To pinpoint barriers encountered by caregivers during ABA service provision.
  • To inform community-engaged strategies for enhancing ABA services.

Main Methods:

  • Sequential mixed-methods study combining qualitative interviews (N=8) and quantitative surveys (N=376).
  • Thematic analysis of interviews and statistical analysis of the Caregiver Priorities and Barriers Survey (CPBS).
  • Community partners collaborated in survey development and refinement.

Main Results:

  • Caregivers reported significant barriers including long waitlists and limited provider availability.
  • Telehealth experiences were mixed, with specific challenges for rural families.
  • Key priorities include reducing diagnostic delays, better school integration of ABA, and effective telehealth models.

Conclusions:

  • Persistent inequities in ABA service access necessitate strengthening the behavioral health workforce and policy.
  • System-level coordination and refined telehealth models can mitigate access barriers.
  • Addressing caregiver-identified priorities can improve outcomes for autistic individuals.