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Updated: Apr 25, 2026
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The Multiple Sclerosis Performance Test MSPT: An iPad-Based Disability Assessment Tool
Published on: June 30, 2014
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Patient experiences with systematically-administered patient-reported outcome measures in multiple sclerosis.
Vincent Desbiens1, Genieve Wong1, Shania Liu1
1EPICORE Centre, Faculty of Medicine and Dentistry, Department of Medicine, University of Alberta, Edmonton, Alberta T6G 2S2, Canada.
Multiple Sclerosis and Related Disorders
|April 23, 2026
Summary
Patient Reported Outcome Measures (PROMs) empower individuals with multiple sclerosis (MS) by enhancing patient-provider communication and personalizing care. Integrating PROMs into clinical practice can improve patient engagement and treatment outcomes.
Area of Science:
- Neurology
- Clinical Research
- Patient-Reported Outcomes
Background:
- Limited research exists on how persons with multiple sclerosis (PwMS) perceive the systematic use of Patient Reported Outcome Measures (PROMs).
- Understanding PwMS perspectives is crucial for effective implementation of PROMs in clinical settings.
Purpose of the Study:
- To explore the perspectives of PwMS regarding the integration of PROMs into clinical practice.
- To identify facilitators and challenges associated with PROM use in MS care.
Main Methods:
- Qualitative substudy of a randomized controlled trial (RCT) involving 33 PwMS.
- Virtual semi-structured interviews analyzed using inductive thematic analysis by two independent researchers.
Main Results:
- Three key themes emerged: patient empowerment, reassurance of provider review, and the need for individualized PROMs.
- PwMS reported perceived impacts on care, challenges, and facilitating factors for PROM integration.
Conclusions:
- PROMs are accepted by PwMS and foster patient empowerment within the clinical setting.
- Suggested improvements include adding open-ended questions, ensuring physician readiness, and individualizing PROMs for better patient needs alignment.
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