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Published on: August 7, 2017
Multi-State Implementation of the Alzheimer's Association Dementia Care Coordination (DCC) Program
Nancy A Hodgson1, Sarra Latif2, Sonia Talwar1
1University of Pennsylvania School of Nursing, Philadelphia, Pennsylvania, USA.
This dementia care coordination program showed high caregiver engagement but mixed results in self-efficacy. Further research is needed to optimize support for dementia caregivers.
Area of Science:
- Gerontology
- Public Health
- Healthcare Management
Background:
- A novel telephone-based dementia care coordination (DCC) program was implemented across multiple health systems.
- The program aimed to bridge clinical care and community support for dementia caregivers.
- Healthcare providers were trained to identify and refer caregivers to specialized support.
Purpose of the Study:
- To evaluate the implementation and caregiver outcomes of the DCC program.
- To assess caregiver self-efficacy, action plan uptake, and resource utilization.
- To understand health system employee satisfaction and workflow integration.
Main Methods:
- A mixed-methods process evaluation using caregiver surveys and health system employee interviews.
- Validated scales (PROMIS, GSE) measured self-efficacy at baseline and follow-up.
- Implementation guided by the Consolidated Framework for Implementation Research (CFIR) and RE-AIM framework.
Main Results:
- Caregiver self-efficacy scores showed mixed results, with no consistent improvement.
- High caregiver engagement was observed: 70% completed action steps, 80% used resources.
- Health system employees reported high satisfaction, but clinician engagement was a barrier.
Conclusions:
- The telephone-based DCC program is feasible across diverse health systems with strong caregiver engagement.
- Consistent improvements in caregiver self-efficacy were not observed.
- Controlled trials are recommended to identify optimal interventions for specific caregiver needs.
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