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Updated: Jul 2, 2026
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Published on: February 16, 2011
Overcoming Patient-Centered Outcomes Research Barriers During and After Critical Illness Hospitalization
Ruth Kleinpell1, Marianna LaNoue2, Susan Lacey3
1Ruth Kleinpell is a professor and vice-dean, Vanderbilt University School of Nursing, Nashville, Tennessee.
Summary
Engaging intensive care unit (ICU) patients and families in research requires addressing barriers like negative experiences and logistical challenges. Providing clear information and fostering a supportive culture are key strategies for successful critical care research participation.
Area of Science:
- Critical Care Medicine
- Health Services Research
- Patient and Family Engagement
Background:
- Recruiting patients and families for intensive care unit (ICU) research presents significant challenges.
- Engaging diverse stakeholders is crucial for understanding and overcoming participation barriers.
Purpose of the Study:
- To identify barriers to research engagement among recently discharged ICU patients and their caregivers.
- To develop strategies for addressing these barriers and improving research participation.
Main Methods:
- Group concept mapping was employed with former ICU patients, their families, clinicians, and researchers.
- Ninety-eight unique barriers were elicited and categorized into seven clusters.
Main Results:
- Key barrier clusters included negative ICU experiences, logistical difficulties, patient/family factors, ICU setting limitations, post-critical illness issues, research fears, and misperceptions.
- Strategies to overcome barriers were identified and compiled into an open-access toolkit.
Conclusions:
- Enhancing patient/family information about research is vital.
- Promoting a research-supportive culture and addressing uncertainty can improve engagement.
- Training clinical staff in research practices is essential for critical care research participation.
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