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Global Rheumatology Registries and Cohorts
Manuel F Ugarte-Gil1, Guillermo J Pons-Estel2, Graciela S Alarcón3
1Grupo Peruano de Enfermedades Autoinmunes Sistémicas, Universidad Científica del Sur, Lima, Peru; Department of Rheumatology, Hospital Guillermo Almenara Irigoyen, EsSalud, Lima, Peru.
Abstract:
Global rheumatology registries and cohorts have been developed over the past 40 years. They have allowed for a better description of the epidemiology of systemic autoimmune diseases, as well as the proposal of new classification criteria, outcome measures, and disease activity states. Although efforts have been made to increase global representation, including researchers and patients from high-income countries, more work still remains to be done to achieve truly global coverage. The examples described in this article might serve as the path to achieve such goal.
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