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Functional abilities and desires for a bionic prosthesis in children with unilateral congenital below-elbow
Camille Eveilleau1, Pauline Lallemant-Dudek2, Doriane Meriot1
1Reference Center for Limb Malformations (CEREFAM), Paris-Est Val-de-Marne Hospitals, Saint-Maurice, France.
Insights
Children with below-elbow deficiency can perform daily tasks but desire bionic prostheses for bimanual activities. Key desires include improvements in self-care, sports, and leisure activities.
Area of Science:
- Pediatric rehabilitation
- Prosthetics and orthotics
- Child development
Background:
- Understanding functional abilities and challenges in children with unilateral congenital below-elbow deficiency is crucial for developing effective bionic prostheses.
- Identifying desired functional improvements can guide the design and prescription of bionic prosthetic devices.
Purpose of the Study:
- To describe the functional abilities of children with unilateral congenital below-elbow deficiency.
- To identify the specific functional desires of these children for bionic prosthetic assistance.
Main Methods:
- A preliminary, retrospective, cross-sectional, observational single-centre study.
- Involved eight children (7 girls, 1 boy) with a median age of 10.6 years.
- Utilized the Disabilities of the Arm Shoulder and Hand Questionnaire and the Canadian Occupational Performance Measure.
Main Results:
- Children demonstrated ability in most daily living activities but struggled with bimanual tasks, particularly those related to schoolwork.
- Children identified 35 activities for bionic prosthesis assistance: 15 leisure/sports, 5 productivity, and 15 self-care.
- Desire for prosthetic assistance was highest for self-care, followed by leisure/sports activities.
Conclusions:
- Children with unilateral congenital below-elbow deficiency can manage many daily, sports, and leisure activities without a prosthesis.
- There is a significant desire among these children to enhance their performance in specific activities using bionic prostheses.
- Personal care, sports, and leisure activities are particularly important areas where children seek bionic prosthetic support.
Background:
A better understanding of the abilities and difficulties of children with unilateral congenital below-elbow deficiency, and the functional abilities they would like to improve by using a bionic prosthesis would inform the development and prescription of bionic prostheses.
Objectives:
This study aimed to describe the functional abilities and desires for bionic prosthetic assistance of children with unilateral congenital below-elbow deficiency.
Study Design:
Preliminary, retrospective, cross-sectional, observational single-centre study.
Methods:
Eight children with unilateral congenital below-elbow deficiency were included (7 girls and 1 boy), with a median (Q1-Q3) age of 10.6 (10.1-11.4) years. We used the Disabilities of the Arm Shoulder and Hand Questionnaire to assess difficulties with activities of daily living and the Canadian Occupational Performance Measure to determine the child's needs and desires in terms of a bionic prosthesis. Descriptive statistics were conducted.
Results:
The children were able to perform most activities of daily living but had difficulty with bimanual tasks. Most limitations related to schoolwork. The children described 35 significant activities that they desired a bionic prosthesis to facilitate: 15 related to leisure/sports, 5 to productivity and 15 to self-care activities.
Conclusions:
Children with unilateral congenital below-elbow deficiency can perform many activities of daily living and sports and leisure activities without a prosthesis; however, they desire to improve their performance of these activities. Activities that are of particular importance to them include personal care and sports and leisure activities.
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