Exploring transitions in care for individuals living with and beyond cancer: A qualitative study

Cancer care involves multiple healthcare providers across various settings. Each time the responsibility of care is transferred from one healthcare provider or setting, referred to as transitions in care (TiC), there is an increased risk of medical error, patient dissatisfaction with care and poor outcomes. The objective of this study is to explore patient perspectives and experiences with TiC during cancer care, and to identify perceived gaps in care during TiC among individuals living with and beyond cancer.

A qualitative study using the interpretive descriptive approach was used to generate clinically relevant insights. Participants were recruited between 1 September 2022 and 9 September 2023, using purposive sampling to obtain a diverse sample. Semi-structured interviews were conducted and analyzed with thematic analysis.

This study was conducted in Alberta, Canada. Cancer care in Alberta is provided through a publicly funded, single-payer healthcare system.

31 interviews were conducted, with three themes emerging: (1) Communication as a key driver of continuity and quality during TiC, (2) Complexity and fragmentation create variation and confusion in care and (3) From system to person: how system failure and strengths shape individual experiences of TiC.

The study highlights the multifaceted nature of TiC among individuals living with and beyond cancer and emphasizes the need for patient-centred, coordinated approaches to improve the quality of care for individuals living with and beyond cancer. The findings highlight the emotional strain during TiC, which can be eased when patients feel informed, supported and involved in decision-making. Survivors can apply this by preparing questions in advance and engaging with support networks. Whereas providers can offer check-ins and clear next steps during TiC.