Cross-sectional survey of perceived pain invalidation among individuals with chronic pain

Many people with chronic pain report feeling pain invalidation by healthcare providers. However, few studies have examined how these experiences are associated with demographic and pain-related characteristics. This study aims to investigate the prevalence of perceived pain invalidation as reported by individuals with chronic pain, the context in which it is experienced, and explore how demographic and pain-related characteristics are associated with perceived invalidation. Individuals with chronic pain were recruited through social media forums to participate in an online, anonymous survey. The questionnaire consisted of measures related to perceived pain invalidation by providers, demographic information, and pain-related characteristics. Most participants (77%) reported having felt pain invalidation from providers. Perceived pain invalidation stemmed from various interactions, particularly when participants perceived the providers as making dismissive statements, references to daily habits, or expressions of doubt. Perceived pain invalidation was associated with younger age, higher economic strain, pain of longer duration, and worse physical function. The findings highlight the need for more patient-centered care and empathy.