Epi-STEP: A multidisciplinary transition model for patients with epilepsy.

Area of Science:

• Neurology
• Adolescent Medicine
• Healthcare Management

Background:

• Epilepsy is a common childhood neurological disorder, with many cases persisting into adulthood.
• Transitioning from pediatric to adult care is crucial but often lacks structured support.
• Existing epilepsy centers frequently lack formal transition programs, highlighting a need for standardization.

Purpose of the Study:

• To evaluate the Epi-STEP protocol, a multidisciplinary transition model for young adults with epilepsy.
• To assess the usefulness of this transition process in preparing patients for adult care.
• To examine the psychosocial well-being of patients and their caregivers during the transition.

Main Methods:

• A monocentric observational study involving patients aged 16+ with epilepsy.
• Data collection at three time points: pre-transition (T0), start of adult care (T1), and 12-month follow-up (T2).
• Utilized standardized instruments and ad-hoc questionnaires for patients, caregivers, and healthcare professionals.

Main Results:

• The study aims to evaluate the utility of the transition process.
• Key metrics include transition readiness and psychosocial well-being.
• Findings will inform targeted interventions to enhance patient and family support.

Conclusions:

• The Epi-STEP protocol provides a holistic care pathway for adolescents with epilepsy.
• This model supports medical, psychological, and social needs during the transition.
• The approach may be adaptable to other chronic conditions requiring structured transition regimens.