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Published on: August 12, 2020
Ethical and equitable considerations when establishing a diagnosis of an inborn error of immunity
Timothy M Buckey1,2,3, Jennifer R Heimall1,4
1Division of Allergy and Immunology, Children's Hospital of Philadelphia, Philadelphia, PA, USA.
Abstract:
As a heterogeneous group of disorders, inborn errors of immunity have a variety of diagnostic and management approaches. Clinical immunologists regularly encounter ethical and equitable dilemmas when caring for this population. While some of these predicaments are similar to any person with a chronic condition, there are additional unique challenges faced by those with an inborn error of immunity. Advances in genetic testing have improved the ability to provide precise medical care, and simultaneously they have forced clinical immunologists to contemplate the ethical and equitable consequences of this testing. As diagnostic modalities and therapeutics continue to advance, new ethical and equitable dilemmas will arise. An understanding of medical ethics by clinical immunologists is fundamental for providing patient-centered medical care.
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