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Angela Caruso1, Martina Micai1, Letizia Gila1

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Summary
This summary is machine-generated.

A new eHealth platform maps Italian Autism Spectrum Disorder (ASD) services, identifying 1,228 centers and over 30,000 professionals. The system reveals regional disparities in ASD care access and workforce distribution.

Keywords:
Autism spectrum disorderDigital platformHealth policy, eHealthHealthcare services

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Area of Science:

  • Public Health
  • Health Informatics
  • Disability Services

Background:

  • Autism Spectrum Disorder (ASD) poses a significant global health challenge, requiring improved healthcare services and policy planning.
  • A national eHealth solution was developed to systematically map ASD healthcare centers throughout Italy.
  • The Italian National Institute of Health led the co-design process for this eHealth platform.

Purpose of the Study:

  • To develop and implement a national eHealth platform for mapping ASD healthcare services across Italy.
  • To create a standardized and accessible system for collecting and disseminating information on ASD services.
  • To support evidence-based policy planning and improve navigation of services for individuals with ASD.

Main Methods:

  • A multidisciplinary working group co-designed and implemented an eHealth platform.
  • The platform underwent a two-step evaluation for technical reliability and operational alignment.
  • Data collection focused on geographical and operational characteristics, workforce composition, access procedures, and information availability.

Main Results:

  • The eHealth platform is publicly accessible via the National Observatory for Autism website.
  • As of 2024-2025, 1,228 services for ASD and/or intellectual disability were mapped, serving children and adults.
  • Over 30,000 professionals are involved; analysis revealed regional disparities in service distribution and workforce.

Conclusions:

  • The national eHealth platform enhances transparency and coordination of ASD services in Italy.
  • It provides a consolidated data source to aid individuals with ASD and their families in accessing services.
  • The platform enables policymakers to monitor service disparities and inform future planning.