Related Experiment Video
Updated: May 29, 2026
14:49
Conducting Respiratory Oscillometry in an Outpatient Setting
Published on: April 8, 2022
Characterizing parent language about home respiratory technology for children.
Kiara Smith1, Sara Munoz-Blanco1, Holly Vo2,3
1Department of Pediatrics, Johns Hopkins University School of Medicine, Baltimore, MD, USA.
Summary
Parents discussing pediatric home mechanical ventilation use medical jargon and focus on family impact, not just the child. This language often carries negative emotions regarding time, finances, and home adaptation.
Area of Science:
- Pediatric healthcare
- Medical communication
- Family-centered care
Background:
- Pediatric invasive home mechanical ventilation presents complex challenges for families.
- Effective communication between healthcare providers and families is crucial for decision-making and adaptation.
- Existing counseling often prioritizes the child's experience over the family's holistic needs.
Purpose of the Study:
- To develop a taxonomy of family-centered vocabulary for counseling on pediatric home mechanical ventilation.
- To analyze parent language regarding medical technology used in home ventilation.
- To understand the focus and emotional valence of family discussions about technology.
Main Methods:
- Analysis of interviews with 38 families using home ventilation.
- Creation, indexing, and organization of a limited data set of technology vocabulary excerpts.
- Quantification of parent vocabulary frequency, focus (child vs. family), and affective valence.
Main Results:
- 2299 excerpts referenced medical technology, primarily tracheostomies and ventilators.
- Parent vocabulary largely mirrored clinical jargon, not lay language.
- Discussions focused twice as often on the family's experience (60% negative valence) rather than the child's.
- Negative emotions were linked to time commitment, home adaptation, and finances.
Conclusions:
- Parental language about home ventilation technology aligns with clinician terminology.
- Counseling should address the significant impact on the family unit, not solely the child.
- Healthcare teams require actionable, balanced language to support families navigating logistical and financial burdens.
Related Concept Videos
01:23Assessment of Respiration
The respiratory system's basic structures and primary functions lay the foundation for nurses' comprehensive respiratory assessments. This assessment includes subjective and objective data to gauge the patient's respiratory health.
Subjective Assessment: Nurses interview the patient to gather information directly during the subjective assessment. It includes questions about the individual's medical history, medications, and symptoms, focusing on past respiratory conditions like asthma or COPD,...
Subjective Assessment: Nurses interview the patient to gather information directly during the subjective assessment. It includes questions about the individual's medical history, medications, and symptoms, focusing on past respiratory conditions like asthma or COPD,...
01:29Respiratory Syncytial Virus Disease
Human respiratory syncytial virus (RSV) is a widespread pathogen that primarily targets infants and young children but also poses a serious health risk to elderly and immunocompromised individuals. Belonging to the Pneumoviridae family, RSV is a negative-sense, single-stranded RNA virus within the Pneumovirus genus. Its global health burden is significant, with millions of cases annually resulting in hospitalizations and mortality, particularly in resource-limited settings. Although most...
01:19Respiratory Assessment: Purpose and Indications
Respiratory assessment is a cornerstone of nursing assessments, crucial for the early detection of patient deterioration. This evaluation transcends routine procedures, representing a critical skill nurses must master to ensure optimal patient care.
Objectives and Importance:
The primary goal of respiratory assessment is to evaluate patients at early risk of clinical deterioration. Since respiratory distress often precedes other signs of declining health, breathing patterns and sounds become a...
Objectives and Importance:
The primary goal of respiratory assessment is to evaluate patients at early risk of clinical deterioration. Since respiratory distress often precedes other signs of declining health, breathing patterns and sounds become a...
01:28Physical Assessment of the Respiratory Tract I: Health History
Physical assessment of the respiratory tract is critical to patient care. It allows healthcare professionals to identify and manage various respiratory conditions. The process involves a combination of subjective and objective data collection.
Subjective Data
Subjective data provides vital information about the patient's health history and symptoms. This data is typically collected through interviews in which patients describe their experiences, symptoms, and concerns.
Health history and key...
Subjective Data
Subjective data provides vital information about the patient's health history and symptoms. This data is typically collected through interviews in which patients describe their experiences, symptoms, and concerns.
Health history and key...
01:30Respiratory System Abnormal Finding I: Inspection and Percussion
Respiratory system abnormalities are a significant concern in healthcare due to their potential to indicate underlying severe conditions like Chronic Obstructive Pulmonary Disease (COPD), asthma, and pneumonia. These abnormalities can often be detected through physical examination methods like inspection and percussion.
Inspection Findings
During an inspection, several findings may suggest the presence of respiratory distress or disease. Pursed-lip breathing, where exhalation is slowed by...
Inspection Findings
During an inspection, several findings may suggest the presence of respiratory distress or disease. Pursed-lip breathing, where exhalation is slowed by...
01:31Respiratory System Abnormal Finding II: Palpation and Auscultation
In assessing respiratory abnormalities, palpation and auscultation are critical tools for detecting and interpreting various pathophysiological changes. These techniques provide insight into underlying disorders by evaluating tactile sensations and sounds produced by the respiratory system.
Palpation Findings
During a respiratory assessment, palpation can reveal several vital abnormalities:
Palpation Findings
During a respiratory assessment, palpation can reveal several vital abnormalities: