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Feasibility testing of a home-based exercise intervention in children with cerebral palsy who are ambulant-a study
Trille Jakobsson1, Katarina Lauruschkus1,2, Björn A Johnsson1,3
1Department of Health Sciences, Lund University, Lund, Sweden.
Insights
This study protocol outlines the HOME-EX feasibility study, developing and testing a home-based eHealth exercise intervention for children with cerebral palsy (CP-A). The goal is to increase physical activity and well-being in this group.
Area of Science:
- Pediatric rehabilitation
- Assistive technology in healthcare
- Childhood physical activity and health
Background:
- Children with cerebral palsy who are ambulatory (CP-A) exhibit lower physical activity levels compared to their peers without disabilities.
- Increased physical activity is crucial for enhancing health and well-being in children.
- eHealth solutions present a potential avenue to support and increase physical exercise engagement in children with CP-A.
Purpose of the Study:
- To describe the procedures for the HOME-EX feasibility study.
- To develop and feasibility test a home-based exercise intervention utilizing an eHealth solution for children with CP-A.
- To identify conditions necessary for the future implementation of this intervention.
Main Methods:
- A mixed-methods approach with adapted participatory design, guided by the Behavior Change Wheel framework.
- Three phases: development, refinement, and finalization, each involving six-week home-based exercise periods with an eHealth solution.
- Recruitment of ten children with CP-A and ten typically developing children (aged 10-16) in southern Sweden; data collection via field notes, questionnaires, eHealth data, and interviews.
Main Results:
- This section is not applicable as the abstract describes a study protocol and not study findings.
- The study protocol details the methodology for assessing the feasibility of the eHealth solution and the home-based exercise intervention.
- Data collection methods are outlined to evaluate the intervention's feasibility and user experience.
Conclusions:
- The HOME-EX study protocol provides a framework for developing and testing an eHealth-supported home exercise program for children with CP-A.
- Findings are expected to enhance understanding of the development and feasibility of such interventions.
- The study aims to lay the groundwork for promoting exercise and improving outcomes in children with CP-A.
Abstract:
Children gain increased health and well-being by participating in physical activity. Children with cerebral palsy who are ambulatory (CP-A) are known to be less physically active than children without physical disabilities, making them an important group of children to support in becoming more physically active. Assistive technologies, such as eHealth, may support physical exercise in children with CP-A. The overall aim of this study protocol will be to describe the procedures of the HOME-EX feasibility study to develop, feasibility test, and map the conditions for future implementation of a home-based exercise intervention using an eHealth solution in children with CP-A.
Methods:
The HOME-EX feasibility study will use a mixed methods approach with an adapted participatory design. The study is informed by "The behaviour change wheel" framework to support health related behavioural changes. The development and the feasibility testing will follow three phases: 1) development; 2) refinement; and 3) finalising, where the children will perform two six-week periods of home-based exercises using an eHealth solution with eight weeks of washout in-between. Ten children with CP-A and ten children without disabilities, aged 10-16 years, living in the southern regions of Sweden will be recruited. The feasibility of the eHealth solution, the home-based exercise intervention, and the exercise testing will be assessed throughout the study. Field notes, questioners, data from the eHealth solution and semi-structured interviews will be used to collect data.
Discussion:
Findings from the HOME-EX study have the potential to increase knowledge about the development and feasibility of a home-based exercise intervention, supported by the eHealth solution, to promote exercise in children with CP-A.
Clinical Trails Registration:
https://clinicaltrials.gov/expert-search?term=NCT07025694, identifier NCT07025694.
